Watching “Not Now” Become “Too Late”

If you've seen the film Still Alice, you know that the title character receives her early onset Alzheimer's diagnosis at an appointment at which her neurologist has insisted she bring a loved one.  Alice brings her husband inside the diagnosis and inside her worst fears after keeping it all contained by privately consulting a neurologist for a few months.

Actually, Alice's worst fear was of a brain tumor — a diagnosis she later wishfully prefers to Alzheimer's. In one of the movie's best lines, Alice laments that cancer is more dignified than Alzheimer's. She notes that no one thinks cancer is funny or humorous, whereas the gradual diminishment of self from Alzheimer's can lead to some pretty awful humor, as Alice herself demonstrates with numerous quips about memory loss.  

Still, alternatingly mesmerized by her cool and horrified by it, we watch Alice break the tentative diagnosis to her husband and to her three adult children — each of the children a potential carrier of the early onset Alzheimer's gene. The coolness gene must be hereditary as well — because we witness a telephone call where one of her daughters calls to report she does, in fact, cary the early onset Alzheimer's gene herself, declining her mother's comfort. Yes, this is a scary cool family.

But Alice's neurologist — he who spends copious time explaining her diagnosis to her and then to her husband and he who even seeks out an opportunity to hear Alice speak at an Alzheimer's Association event — is the coolest of all. He seems to pitch it just right: be hopeful until it no longer makes sense to be hopeful and then be pragmatic. And, he is unafraid to act as a reality check.

Well, he must be a bit of an outlier if this week's report on the failure of neurologists or primary care physicians to present the Alzheimer's diagnosis to their patients is accurate.   Of course, the study does not distinguish between the early onset and advanced onset diagnosis — the former likely to present as more of a crisis less likely attributable to an aging brain– so an Alice type might not have been in the study group.

Still, the reasons for failure to disclose diagnosis are remarkable: no time, no billable code, a reluctance to deliver a complex and fatal diagnosis without the certainty highly advanced (or post-mortem) testing that insurance often will not fund can provide, all make it easy to say: "not yet."  And, if you post-pone things often enough, it is easy to arrive at "too late" without having told the single person who, in our legal system, most needs to take action on advance health care directives what they need to know: that they have a fatal diagnosis that may fairly quickly rob them of their capacity to plan in this way.

Interestingly, we never see Alice consult an attorney. Are we to assume that super organized Alice and her high powered husband have all the legal documents in order?

One moment of clarity is shown where Alice takes the first  failed steps toward committing a long-planned suicide and her husband asks her, once the clarity has fled, whether she would like to be done with living. But, even for that, the "not now" has become "too late." He can only eye her appraisingly as if he had not seen the suicide instructions she left for herself in her computer.

 

 

 

 

 

 

 

 

 

 

 

Delaying DISH Cuts

Ah, the physician sustainable growth rate formula — the health care reimbursement and policy gift that keeps on giving. Never implemented, though oft threatened, the SGR stands as a symbol of what power even the discussion of provider reimbursement cuts has for members of Congress and their health care provider constituents.

Since the latest extension/delay in SGR implementation expires very shortly, it is back on the agenda. Sadly, the SGR annual kick-the-can down the road fest does not include much discussion about what reasonable provider reimbursement would look like under Medicare, just a discussion about whether finally implementing the oft-delayed SGR cuts would be fair to providers.

Today, Modern HealthCare Reports that another kick-the-can down the road provision — pending DISH cuts– is in the bargaining mix for SGR:

Finally, the House deal would make a couple of changes to cuts to the Disproportionate Share Hospital program that were part of the Affordable Care Act. For starters, it would delay those cuts by another year, pushing them back to fiscal year 2016.

Continuous delay in implementing reasoned cuts in Medicare and Medicaid reimbursement and subsidization, rolled over into seemingly unreasonable aggregated cuts, casts Congress as the rescuers of providers — a pretty valuable role to play indeed.

King v. Burwell: Staying the Ruling

It was Justice Alito who, at oral argument in King v. Burwell, raised the issue of ruling for the petitioners while  possibly adding a stay to the mandate in order to avoid as much dislocation in insurance markets as possible.  The six months seems to be driven by the needs of the exchanges (where products to be sold through the exchanges typically need submission and approval well ahead of their sell-by dates) and by the precedent in the Northern Pipeline case.

In Northern Pipeline, the Supreme Court both trimmed the sales of the authority of the federal bankruptcy court system and stayed its mandate for about six months in order to give Congress time to address the inevitable chaos surrounding pending bankruptcy matter and diminished bankruptcy court authority.  

The interesting thing about the Northern Pipeline approach is that Congress was required to act fairly speedily, though on a matter overwhelmingly within its control — the appropriate scope of authority of U.S. bankruptcy courts interpreted under the limitations of Article III.

Here, we could toss the matter back to Congress but on a matter not overwhelmingly in their control — whether the states should establish their own exchanges or participate in the federal exchange.  The only way Justice Alito's point makes sense is that if the argument that Congress intended the inverse — to require states to establish exchanges.

The ACA represents cooperative federalism — flexible federalism, if you will. Reading the statute as the explicit intent of Congress to, by subterfuge and through a tax provision, usurp the power of the states to decide between a state operated exchange and a federally operated exchange wrenches the statute from its moorings by insisting an inverted reading is a clear reading.

King v. Burwell: Was That What You Said Last Time You Were Here?

Justice Kagan nailed it when she noted that Michael Carvin, on behalf of Petitioners in King v. Burwell, was singing a different tune when she noted that at his last visit he had maintained (on behalf of a different client and in another case called NFIB v. Sebelius) that the insurance Exchanges cannot operate as Congress intended without subsidies. After a little uneasy laughter, he recouped to maintain that Congress intended all the benefits of Exchanges even without subsidies, even though conceding that one of the wonders of subsidy-less exchanges is that they might have nothing for sale and no buyers to purchase inside them. 

Michael Carvin sounded like he had the certainty of his convictions that Congress intended it all to unfold like this but Justices Kagan, Sotomayor, and Ginsburg (seriatum) sounded skeptical. Certainly a foolish consistency may be the hobgoblin of a little mind but a complete reversal of narrative on how insurance markets work takes  appalling ignorance of how health insurance markets work or some guile or, now that I think of it, maybe both.

Oral Argument in King v. Burwell: Statutory Construction Debate

Justice Breyer staked his position on a textualist vs. a contextualist vs.a hyper-textualist reading of the Affordable Care Act pretty early in oral argument for King v. Burwell, yesterday. He observed: "this statute is like the tax code more than it's like the Constitution," meaning that there are definitions within definitions and interlocking provisions to be parsed before you can say you have read the statute in any meaningful way — a very lawyerly observation indeed.

The significance of this utterance was quickly made clear by his reading of ACA section 1311 and section 1321. But the observation also resonated throughout the entire oral argument as alternative readings of the statutory language proliferated.

What place does hyper-textualism have in statutory interpretation? Once it has staked its place in Constitutional interpretation, should it bleed over into statutory interpretation? And, if it does, what other complex pieces of legislation — far from the ACA — will also be found to be problematic? There's a reason so many amicus curiae briefs were filed in the case that focused on non-health care law concerns.

This the first in a series of posts commenting on yesterday's oral argument in King v. Burwell. Next up: Was That What You Said About Federal Coercion of the States Last Time You Were Here?